In Mumbai, 41-year-old Rahul, who has been on dialysis for seven years, had a "painful" time coming back from the hospital. “I usually take a rickshaw to reach the center because it is barely 3 km from my home. The morning. Today, I changed two buses to reach the hospital, which is understandable at these times. But on my return trip, the buses refused to let me board. saying they were only ordered to transport government officials, "he said.
Rahul had to make several requests to the driver and even get in touch with the authorities at the bus depot to let him board a bus. Misinformation still reigns. "One of them even told me that he didn't want me to take the bus because he didn't want to get the virus," he said.
A Gujarat patient, who does not have a private vehicle, said he had delayed his dialysis for one day because he could not go to the hospital. "We asked for help from the administration", Explained the 40 year old woman, on dialysis for forty years.
“It's nothing less than a nightmare. We just want the administration to allow a limited number of cars and taxis to circulate. Many dialysis centers reduce the frequency of dialysis from 3 to 2. This could lead to serious health problems, "said another patient, Sejal. , adding that she postponed her procedure at least twice because there were no cars to take her to the hospital.
“Dialysis is a life-saving procedure that allows people with kidney disease to survive by cleaning their blood. We need the authorities to cooperate and raise awareness of such emergencies. If this procedure is delayed, it can leave toxins like urea, creatinine and water in your blood, which can be toxic, "said nephrologist Bhupender Gandhi.
However, some people are struggling to make things better for these patients. Hospitals have also started to issue emergency cards, which can be shown to law enforcement. Samiir I liked it, a 47-year-old independent market strategist who also undergoes dialysis sessions, worked closely with local government to make sure the issue was resolved as soon as possible.
"We can be on the ground and make our contributions, but only the government has the infrastructure and resources to carry out these suggestions that can alleviate the problems for patients," he said.
Halady, who is associated with the Amar Gandhi The Mumbai Foundation, an advocacy group that raises awareness of kidney disease, told YOU that traveling between homes and hospitals is a big problem for people who do not have a private car.
Founder of Kidney Warriors, Vasundhara Raghavan, said she has been inundated with medical emergency requests since the lockdown. "People call from everywhere - Punjab, Tamil, Nadu, Maharashtra. We are trying to provide them with the advice they need, "she said.
Caregivers also face problems. “My father's physiotherapist from Ghaziabad was not allowed to come to my house yesterday morning. Although he told the police that the patient was bedridden and needed physiotherapy twice a day, he was not allowed, "said a Delhi resident. .
People working closely with the administration think things will take a while to streamline, but will eventually do so. “People who need radiotherapy or chemotherapy, and even people on dialysis are affected. But we are facing an unprecedented situation. When a natural calamity occurs, we know how we can manage it, but it's completely new for everyone. can be resolved locally, but we can only do it under proper supervision. We need control rooms in each district and a nodal officer who oversees emergencies, "said Anand Lal Banerjee, former Uttar Pradesh DGP, who has worked closely. with the Maharashtra administration to ensure that emergency services are not affected.
(Some names have been changed to protect identities)
This article appeared first (in English) on THE TIMES OF INDIA